01 - Opening Remarks from Elisa Seeger (Founder of the ALD Alliance)

(4:52)

Elisa Seeger : Diagnostic Challenges for Rare Disease Patients

(7:47)

Elisa Seeger [Finding Zebras]

(2:24)

28 - Closing Remarks by Elisa Seeger (Founder, ALD Alliance)

(1:33)

15 - Day 1 Closing Remarks by Elisa Seeger (Founder, ALD Alliance)

(1:28)

Parent and Patient Perspectives - Elisa Seeger

(15:50)

SESSION 2 | Legislative Updates - Elisa Seeger, Miranda McAuliffe, Emily Fields - bluebird bio

(16:22)

ConnTV Elisa Seeger

(3:31)

Dokumentation Leukodystrophien Leben mit seltener Krankheit HD

(1:9:46)

The Torrey Family: Living with ALD

(13:46)

Elisa Rosselli - The Best Day of My Life (Demo Version) (Official audio)

(2:33)

Elisapie: NPR Music Tiny Desk Concert

(17:23)

Quinto Regimiento

(4:11)

Messed Up Things The Producers Of Fame TV Series Dont Want You To know!

(26:41)

Diana Ross - We Shall Overcome (HD quality)

(5:21)

Deadly disease ravages boy’s brain

(3:11)

Elisa Semprini - Always on my mind (Lugo 2016)

(3:49)

Protocol for Diagnosis and Management Guidelines - Sarah Bradley, MS, CGC

(26:57)

Welcome \u0026 ALD Alliance Overview - Seeger

(6:2)

Philanthropy in Phocus Ep #35 - Elisa Seeger of ALD Alliance

(1:2:42)

Day One Closing Remarks - Seeger

(1:55)

Vote Yes on Aidan's Law (ALD) | BK Stories

(6:41)

Tommy DiMisa: Philanthropy in Phocus New Podcast Coming Fri 9.3.21

(2:10)

Newborn Screening in America - 2024 NORD Living Rare Forum

(43:42)

Closing Remarks

(2:23)

21Investigates: Indiana tests for 35 of the recommended conditions in newborn screenings

(4:56)