ACMCRN Rare Disease Day Presentation

(59:31)

Arachnoiditis short video about how long it takes to be diagnosed with a rare disease

(40)

Unseen Struggles: The Reality of Rare Diseases

(3:6)

Harnassing AI and machine-learning platforms in Rare Disease: Living with Arachnoiditis SOPATE 2023

(10:1econd)

Arachnoiditis Awareness Month: Shine a Light on This Rare Disease

(1:14)

Awareness month video includes symptoms to watch for!\

(1:14)

Arachnoiditis Causes Video Short

(1:9)

Launching the new Rare Disease Research Network - RAREfest24

(36:28)

ACMCRN International Patient Registry

(22:7)

Grassroots Initiatives in Rare Disease Advocacy | Rare Diseases Podcast Season 2 Episode 7

(56:43)

A Rare Diagnosis

(3:40)

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(1:12)

Omics approaches in rare disease diagnosis (STEn)

(16:19)

The Story of Emmalyn Freeze

(3:44)

Rare diseases: how the European Reference Networks support health professionals

(7:6)